LoPro Network Event

LoPro Network is an education and cooking program for patients with PKU and their families. This regional, interactive, 11⁄2-day event is designed to provide a unique opportunity to learn more about disabilities associated with blood Phe above the recommended treatment range and to improve low- protein cooking skills. Participants will work side-by-side with professional chefs using recipes from the app “Simply Sauces, Soups and Smoothies ” as well as participate in educational workshops led by experts in the field of metabolism. The program will be open to dietitians who manage patients with PKU.

NEXT EVENT: June 10-11, 2017 Culinary Institute of America in Hyde Park, NY


Program Agenda

Saturday, June 10, 2017
12:00pm  Welcome and Refreshments
1:00pm    PKU Research Update presented by Harvey Levy, MD
2:00pm    Neuropsychology in PKU presented by Shawn Christ, PhD
3:00pm    Break/Snack
3:30pm    Interactive Workshops (2 of 3):
                      - High on Phe- Active Learning for Children with PKU
                      - School Lunch- Quick Tips and Tactics
                      - The Teenage Brain- What’s going on and what helps?
5:15pm    Panel Discussion on Hidden Disabilities in PKU
6:30pm    Reception/Dinner/Exhibits

Sunday, June 11, 2017
8:30am   Interactive Cooking Sessions/Tasting (2 of 3):
                    - Simpy Salads
                    - Simply Sauces
                    - Simply Soups
12:00pm Closing Remarks

Other Event Details

Registration fee: $25.00 per family or dietitian.  The registration fee includes all educational and culinary sessions, Saturday evening dinner, snacks and beverages.  Space is limited to 60 attendees.  (Please note: PKU participants must be at least 8 years old and accompanied by 'up to' 2 adults)

Travel Scholarships:  Please email This email address is being protected from spambots. You need JavaScript enabled to view it. for more information.

Payment Options:  Credit card payment is required to confirm your registration.

Accommodations:  Participants are responsible for their own hotel rooms. A list of hotel options will be included in the registration confirmation email.  

Travel & Transportation:  Participants are responsible for their own travel. A list of airport options will be included in the registration confirmation email.


LoPro Network is sponsored by BioMarin.