LoPro Network Event
LoPro Network is an education and cooking program for patients with PKU and their families. This regional, interactive, 11⁄2-day event is designed to provide a unique opportunity to learn more about disabilities associated with blood Phe above the recommended treatment range and to improve low- protein cooking skills. Participants will work side-by-side with professional chefs using recipes from the app “Simply Sauces, Soups and Smoothies ” as well as participate in educational workshops led by experts in the field of metabolism. The program will be open to dietitians who manage patients with PKU.
NEXT EVENT: June 10-11, 2017 Culinary Institute of America in Hyde Park, NY
12:00pm Welcome and Refreshments
1:00pm PKU Research Update presented by Harvey Levy, MD
2:00pm Neuropsychology in PKU presented by Shawn Christ, PhD
3:30pm Interactive Workshops (2 of 3):
- High on Phe- Active Learning for Children with PKU
- School Lunch- Quick Tips and Tactics
- The Teenage Brain- What’s going on and what helps?
5:15pm Panel Discussion on Hidden Disabilities in PKU
8:30am Interactive Cooking Sessions/Tasting (2 of 3):
- Simpy Salads
- Simply Sauces
- Simply Soups
12:00pm Closing Remarks
$25.00 per family or dietitian. The registration fee includes all educational and culinary sessions, Saturday evening dinner, snacks and beverages. Space is limited to 60 attendees. (Please note: PKU participants must be at least 8 years old and accompanied by 'up to' 2 adults)
Credit card payment is required to confirm your registration.
Participants are responsible for their own hotel rooms. A list of hotel options will be included in the registration confirmation email.
Participants are responsible for their own travel. A list of airport options will be included in the registration confirmation email.
LoPro Network is sponsored by BioMarin.